Re: ruminations on nlvd

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Posted by yvona on June 25, 1999 at 12:13:36:

In Reply to: ruminations on nlvd posted by richard morris on June 12, 1999 at 11:59:14:

:Richard,
As an adult with nvld, your post really makes me angry. I’ve been going to respond for some time now and keep putting it off.
You talk about “as the drunks say”. The Serenity Prayer is for a lot more than drunks. Let me quote it for you:
“God grant me the serenity to accept the things i cannot change,
the courage to change the things i can,
and the wisdom to know the difference.”
As an adult who has always known i was “weird and different” but never quite knew what was wrong, this nvld diagnosis has been a great find.
However, now that i know what is wrong, i want to develop compensations, accommodations modifications and most important, STRATEGIES in order to help myself function both at work and in social contexts.
I have made the serenity prayer my own, because with NLD, i need the wisdom to know what i must accept and what i can change. I need the serenity to help me accept the many things which i would love to change, but can’t. And i also need the courage to change what i can.
This is a very ancient prayer and has nothing to do with drunks.
You also say “we always have had kids who couldn’t cut it academically”. In my case the nld has NOT affected me academically to a great degree. (i have a master’s degree, and had no major problems in academics).
My problems have to do with social things and employment issues like getting and keeping a job. Like you, when i was growning up, all these helps and services — like occupational and speech therapy, just for an example — weren’t available. I wish they had known what they know now, i think you and i would have been better off. I’m even now thinking of checking into speech therapy, to help me master converstional skills, and ot to deal with my klutziness.
You refer to “we can do all things through Christ who strengthens us”. Well I’m sorry to say, after a quarter century of being a born again Christian, that God has NOT strengthened me. He has NOT enabled me to obtain and keep employment. He has NOT intervened in social situations. He has NOT made the disability go away and he has NOT helped me to compensate. So much for your great, wonderful, powerful and loving God. He donesn’t help people with disabilitites. We have to figure out how to help ourselves, and develop compensatory strategies on our own.
And as for therapy, the purpose of therapy is NOT as you say to find excuses. It is to help us compensated for our disablities and lead us to strategies we couldn’t come up with on our own.
Yvona

Follow Ups:

Re: ruminations on nlvd… and clouds Steve Dykstra 21:02:47 6/26/99(10)
- Re: ruminations on nlvd… and clouds Debbie M. 17:07:44 7/21/99(8)
  - Re: Misunderstanding VB 20:24:59 7/21/99(7)
    - Re: Anger VB 20:38:53 7/21/99(6)
      - Re: Anger Steve Dykstra 13:49:53 7/22/99(1)
        
        Re: Anger – correction Steve Dykstra 14:00:34 7/22/99(0)
      - Re: Anger Steve Dykstra 13:48:47 7/22/99(3)
        
        Re: Some Points VB 19:01:01 7/22/99(2)
        
        Re: Some Points Steve Dykstra 20:20:43 7/22/99(1)
        
        Re: You make some valid points but VB 16:15:30 7/23/99(0)
- Re: clouds VB 18:58:00 7/20/99(0)

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Comments:
: :Richard,: As an adult with nvld, your post really makes me angry. I’ve been going to respond for some time now and keep putting it off.: You talk about “as the drunks say”. The Serenity Prayer is for a lot more than drunks. Let me quote it for you:: “God grant me the serenity to accept the things i cannot change,: the courage to change the things i can, : and the wisdom to know the difference.” : As an adult who has always known i was “weird and different” but never quite knew what was wrong, this nvld diagnosis has been a great find. : However, now that i know what is wrong, i want to develop compensations, accommodations modifications and most important, STRATEGIES in order to help myself function both at work and in social contexts. : I have made the serenity prayer my own, because with NLD, i need the wisdom to know what i must accept and what i can change. I need the serenity to help me accept the many things which i would love to change, but can’t. And i also need the courage to change what i can. : This is a very ancient prayer and has nothing to do with drunks.: You also say “we always have had kids who couldn’t cut it academically”. In my case the nld has NOT affected me academically to a great degree. (i have a master’s degree, and had no major problems in academics). : My problems have to do with social things and employment issues like getting and keeping a job. Like you, when i was growning up, all these helps and services — like occupational and speech therapy, just for an example — weren’t available. I wish they had known what they know now, i think you and i would have been better off. I’m even now thinking of checking into speech therapy, to help me master converstional skills, and ot to deal with my klutziness. : You refer to “we can do all things through Christ who strengthens us”. Well I’m sorry to say, after a quarter century of being a born again Christian, that God has NOT strengthened me. He has NOT enabled me to obtain and keep employment. He has NOT intervened in social situations. He has NOT made the disability go away and he has NOT helped me to compensate. So much for your great, wonderful, powerful and loving God. He donesn’t help people with disabilitites. We have to figure out how to help ourselves, and develop compensatory strategies on our own. : And as for therapy, the purpose of therapy is NOT as you say to find excuses. It is to help us compensated for our disablities and lead us to strategies we couldn’t come up with on our own.: Yvona

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