Re: NVLD and Medication – need advice/suggestions, HELP

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: MY DAUGHTER IS PRESENTLY ON ZOLOFT FOR DEPRESSION. SHE HAS BEEN RECENTLY DIAGNOSED WITH NLD. SHE HAS BEEN ON MED FOR ABOUT TWO MONTHS. INITIALLY WE SAW A MAJOR CHANGE IN HER. SHE WAS NOT AS COMBATIVE AND SEEMED MORE AT EASE IN DEALING WITH NEW SITUATIONS. HOWEVER THE LAST TWO WEEKS SHE HAS BEEN BACK TO HER OLD SELF. I THINK INITIALLY THE DRUG WORKS. THERE IS PERHAPS DEPRESSION FROM HER FRUSTRATIONS BUT THE DRUGS DO NOT DEAL WITH HER UNDERLYING PROBLEM WITH FRUSTRATION. I THINK ONCE SHE FIGURES OUT SHE IS STILL FRUSTRATED THE DEPRESSION CREEPS BACK IN. I ALSO FEEL WE MAY HAVE SEEN GOOD RESULTS IN THE BEGINNING BECAUSE OF THE WAY WE DEALT WITH HER. WHEN YOU FIRST FIND OUT THEY HAVE A SERIOUS PROBLEM YOU INTURN BECOME MORE COMPASSIONATE AND PERHAPS MORE PATIENT. OVER TIME YOU LOSE SIGHT AS YOU BECOME MORE COMFORTABLE WITH THE SITUATION AS THEY DO. I JUST CAME BACK FROM A FRUSTRATING VACATION WHERE I READ THE EXPLOSIVE CHILD. I GOT SO MUCH INSIGHT OF THE SITUATION THROUGH THE BOOK. YOU HAVE TO REALLY UNDERSTAND THEIR THOUGHT PROCESS AS YOU DEAL WITH YOUR KID. I HAVE LIMITED EXPERIENCE AND DO NOT HAVE LONG TERM RESULTS TO TALK ABOUT. I WAS VERY AGAINST ANY MED IN THE BEGINNING. MY DAUGHTER THREATENED SUICIDE A COUPLE OF TIMES. THAT WAS ENOUGH TO GIVE IT A TRY. HOWEVER I THINK IF YOUR IN A SAFE PLACE WITH YOUR KID ALTERNATIVES SHOULD BE TRIED WITHOUT MED. I STARTED USING THE TECHNIQUES DISCUSSED IN THE BOOK (THE EXPLOSIVE CHILD) AND TO ME IT WORKS. TOMORROW WE SEE THE PSYCHOLOGIST AGAIN TO DISCUSS HER MED. I DO THINK EVERYBODY SHOULD READ THE EXPLOSIVE CHILD ESPECIALLY THOSE WHO HAVE TRIED MED AND THOSE WHO ARE THINKING ABOUT IT. I THINK YOU HAVE TO REALLY LISTEN TO YOUR CHILD AND UNDERSTAND THEIR UNIQUE WAY OF THINKING. THERE’S PROBABLY NO ONE DRUG THAT WILL HELP THE PROBLEM BUT PERHAPS ONLY DEAL WITH ONE ASPECT. I THINK THE MOST IMPORTANT THING YOU CAN DO AS A PARENT IS ACCEPT YOUR ROLE AND MAKE THE CHANGES YOU NEED TO MAKE AS A PARENT. JUST MY THOUGHTS “WHO KNOWS” : : My 7 year old daughter has been diagnosed with NVLD. It appears that there are many components to her problems such as PDD, Obsessive/Compulsive behavior, and alot of social/emotions issues. She has has the WISC III evaluation done. I’m not sure of the scores off hand, but there is a significant difference between her actual God given talent and what she is now achieving. She had a 20 point spread in her social/emotional area and she really working at a 4 year old level. She is extremely smart, was reading at age 4 and can read and comprehend just about anything you give her to read. She has a hard time in math and had a very hard time learning to print. We have tried to alter the environment, however, there is not much in the way of altering that needs to be done. We have a loving family with a second daughter of 2 years who is very loving and kind. We live in a good neighborhood and do not have any bad financial problems looming, so environmentally speaking, we have done all we can do. Things have gone somewhat better lately, however, she continues to have the social/emotions problems both with the family and her friends. I am very much afraid that she will loose her friends because of her emotional outbursts and extreme obsessivness in activites. She has a very hard time transitioning to different situations which other children her age just cannot understand. I am frightened about school this year. As she goes older I know that the social/emotional demands become greater and it will only become harder for her. With more homework coming into the picture, this will only cause more meltdowns and I don’t even want to get into the clothes issues. The only wanting to wear one or two things over and over and this year she can fit into the clothes she wore last year. I’m not looking forward to mornings. : : With that in mind, and sorry it was so long, our pshychologist has now asked us to consider starting her on an SSRI drug. She is not pushing this and knows my reservations about putting her on any type of drugs. However, she feels that there is a very biological basis to her issues and really feels that this avenue may help her in a very significant way. I too am now wondering if this is the direction to head now. If I can help her to feel better about herself and how she deals with things, I believe it would make her life so much more enjoyable, along with mine and our family. I would do anything to make her happier and feel better. I just worry about short term and long term side affects of these drugs. : : Can anyone please help me with any suggestions or ideas and I would most certainly love to chat with someone whose child has taken these drugs and what their reaction was, side affects, etc. This is a very big step to take and I want to have all the information I can before making this decision. : : Thank you for reading my long story and for any info anyone is willing to give. Please feel free to e-mail me also. : : Debbie B.

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